Hi there family and
friends!
This week was more eventful than was expected.
My headache has been strong, even with the special
migraine medications.
Last Saturday was a tough and beautiful day. I was
able to go shopping in the morning, attend a beautiful wedding ceremony with
Catherine and Cecilia, and then Alex and I were able to attend part of the
reception. I was ecstatic to be able to share in this joyous event and to
celebrate with such wonderful friends. It was hard to make the call to leave
early as my headache became severe... we paid our wonderful babysitter as if
she was there until 10pm as originally planned, although we were home at 8:30pm...
Sunday brought sickness in our girls so we stayed
home and cuddled them and helped them through the yuckiness, and I was able to
rest a lot and try to recover from Saturday and prepare for the week on my own.
On Monday I called the CHAMP nurses at Foothills
Hospital and did a phone consult about the ineffectiveness of the medicine.
After the nurse met with the doctor, we had a discussion and they have
prescribed two additional pills: Amitriptyline (10mg - to be increased to 50mg)
and Chlorpromazine (25mg). So far those meds have helped me to be calmer and
sleep more, which was why they were prescribed -- I had been only sleeping five
hours a night because of the pain, and now I have been able to get up to eight
hours last night. :) ... We also called our good friend who contacted her
12yr old niece to come and stay with me and "nanny" the girls with me
for the week. She is such a great help!
On Tuesday, a close friend came visit for the
majority of the day, and it was nice to have our "nanny" watch the kids
as we visited and crafted. Also, the CHAMP scheduling nurse called to confirm
my CSF Flow appointment: Wednesday August 1. I have to be at the Foothills
Special Services Building - Nuclear Medicine at 9:30am. The test starts at ten
and is scheduled to last between two to six hours (after which I get to go home
-- although I may need to go back after 24hrs and maybe 48hrs, depending on
what they see and need to see). I will be receiving a spinal tap and then dye
will be injected and then xrays will be taken to document the progress of the
dye through my spinal fluid. Thankfully it is not a nuclear dye so I do not
need to be put in isolation, and it is an outpatient procedure so I will be
able to sleep in my own bed. I am concerned about the procedure itself, the
dangers of a spinal tap, the possibility of an ER visit (and bloodpatch?)
from the consequent headache, and all of the unknowns. Mom will fly in next
Tuesday so she can take care of the girls while Alex is at the hospital with
me.
On Wednesday Grandpa had a stroke. It was a minor
stroke but all health issues for a person over 80 can be major. I hadn't seen
Grandpa in almost a year and my heart ached to hug him... so Alex flew me here
to Vancouver Island on Wednesday night (my cousin Melissa travelled with me and
pushed my wheelchair in the airports and through the hospital). Flying was a
horrendous ordeal for my headache, but my heart was happy to be able to
see Grandpa in the Duncan emergency room and to hug and kiss him and tell him
that I love him. (And we said goodbye for now to our "nanny".)
Grandpa has still not been released although each
day they keep saying it will happen tomorrow. Thursday morning I waited for him
here at Mom and Dad's in the morning (and went for a nice forest stroll with Dad),
and then visited with him in the late afternoon in his hospital room.
Today we went to Walmart in the morning to get
some treats for Grandpa's house while we waited to hear the conclusions of the
echocardiogram that they performed on Grandpa in Victoria. And this afternoon I
rested while waiting for the announcement of his discharge... we are still
waiting... it is 6pm and we are about to have dinner and cake to celebrate my
brother's birthday. I wish Grandpa was here... we'll have to sneak him some ice
cream cake tonight if he is kept in the hospital again. :D
My headache has been horrible. I am not sure if it
is the new elevation, or the new medication side effects, or the traveling, or
stress, or a new normal... Today I started at 6/10 and have been steadily
increasing - I am sitting at a 8/10 right now, with a dull aching helmet and a
searing hot pain across the crown of my head and a throbbing in my brow and
eyes...
So that is the low-down, up-close-and-personal
story of my week.
Thank you for letting me share my heart and life
with you. I am sorry about the impersonal-ness of this mass email, but it is
easier to share with all of you I care about at the same time.
Thank you for your love and support -- we
appreciate your messages, hugs and prayers.
:)
As a stay-at-home Mom of three toddlers, I am struggling with my constant headache. I have not had a pain-free moment since before April 23, 2012... I am using this blog to keep my family and friends up to date on how things are with me. I am hoping to write at least once a week...
About Me
- Angela
- You may be unaware that I have been battling with a constant debilitating headache since the end of April this year. To keep my friends and family better informed about how things are going with me, I have started a blog, which includes a history of my communications about my headache, my tests, treatments, and overall well-being. I am hoping to blog at least once a week... You can check it out, read, comment, and/or subscribe...