Hello again Family
and Friend Family!
I
have much to be thankful for this week.
1) I came home to my family after a good
visit with extended family.
2) Grandpa is out of the hospital again –
after multiple infections and complications. He is resting and adapting in the
comfort of his own home, with the comfort of my parents’ proximity (upstairs).
3) The CSF Flow Study procedure on
Wednesday went well.
a) Mom was able to come back into town to
care for the girls, before returning home on Thursday.
b) The procedure was not as menacing as
we originally anticipated. The freezing for the spinal tap injection was the
most painful, although laying stick still for so long was arduous. For two
hours I had to lay still as they took pictures every 15 minutes – I was very
thankful for the mp3 book I had downloaded onto my iPod. Then, after a pee
break, I had to lay still for 40 minutes for the 3D image that concluded in a
CT scan.
c) Even the return visit Wednesday night
to the ER at Foothills Hospital was a blessing...eventually. I was able to try
a new medication (Sumatriptan) that seemed to help a little, and we got the
verbal results of the Flow Study:
i) No leak
ii) No infection
d) We are able to check this off as done
and no longer a concern.
4) My massage therapist Kendra is able to
reach parts of my headache – and possibly alleviate some of it... still
adjusting to see what is the necessary pain to achieve the gain... I was
blessed to be able to see her twice this week as I missed my appointment last
week with my changing plans.
5) We are enjoying a wonderful long
weekend. We have not ventured from home, except when Alex ran out to the
grocery store twice. Our girls were excited to have their bath in our outside
turtle pool last night, and they delighted in our backyard picnic all day today
– pool fun, hot dogs in the shade from a sheet, more pool fun, family nap in
our beds, even more pool fun, freezies, hamburger dinner... We were able to
have some special time without the stress of leaving home, as even a walk to
the park is still a journey for me. It has been a splendid day.
6) Loving family and friends that are now
family. Thank you for your prayers and support!
I
am humbled to have so many big details to be thankful for, as there are
innumerable small blessings that I need to remember to note.
Next
on my headache journey? Keep on keepin’ on. I am waiting to hear back from the
CHAMP nurses as to how to possibly work in the new medication, but their office
won’t reopen until Tuesday). I will be making a follow-up appointment with my
GP to go over the written results of the CSF Flow Study – and wait for my
November follow-up with CHAMP. I continue to keep my headache journal and
life details so that information is at hand if and when needed. ... I will take
advantage of the summer and hire one of two nanny teenagers that our girls love
to help out on work days. Praying for and about September. ...
:)
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